Panic Attacks & Stress


Panic attack during family emergency:


Mid 20's Me: Lets leave and party-F this!


Mid 30's Me: Stay, but walk away.


Lay upside-down to relax my heart going crazy and try to catch my breath. Get circulation to my heart and brain. Deep breaths. Talk to God. Cry. Rinse face. Create exit plan. Walk back in with

plan that is best for my health, instead of what is best for everyone else. If they get abusive, Leave. Don't stay like the old you-you do not deserve this. <IG POST>


After an extremely stressful 2.5 weeks of family emergency issues, I am slowly trying to bring myself back mentally & physically.


Regaining my strength is ten times harder and takes longer than in my 20's.


Living with half a heart (HLHS) is very hard on my body, and one thing my body cannot handle is high stress-esp. for several days in a row. What this does is force me into putting my body first and everything else on the back-burner which is an emotionally painful process within itself. No one can be helpful to anyone else if they don't put their own oxygen mask on first-as we all have learned on every flight.


I have my own oxygen at home for panic attacks and times of high stress when I can feel my

body breaking down and suffering...which, again, in itself is a mental & emotional process. But first-the body.


As many of you may know I love doing experiments on myself to find what works best for ME. I have a unique body and do not have statistics of survivors to rely on with what works for HLHS patients since we are the first surviving generation-so, I am one of a few of us in our 30s and 40s who is creating them, along with my own way of surviving that works best for me. My approach to the care of my body and mind is quite different than most people with chronic or terminal illnesses-esp. CHD.


After countless times in the hospital for various reasons through the years: not knowing if I'm having a stroke, heart attack, seizure, panic attack, etc., and going to the ER in itself is traumatizing, so I wanted to figure out a way to achieve avoiding hospitals even more than I already do since I've had so much success being my own doctor, aside from surgeries. So, when I was telling a CHD friend about this, he mentioned he had an extra oxygen machine and asked if I wanted it. Well, I don't believe in coincidences, I just knew I was supposed to have it even though I felt unsure...and I'm so glad I accepted his offer!


Since then, due to the oxygen, as needed anxiety remedies, and grounding techniques I have learned over the years and now teach during my coaching sessions if you have anxiety, I have rarely been in the hospital and haven't had a mini-stroke in almost 2 years.


*I have learned the PROPER use of oxygen-which is very important-and if you do have HLHS or other CHD, this doesn't mean this is right for you.


Stephanie Romer

Stephanie@CHDLegacy.com

49 عرض0 تعليق
1st Generation Parents
First generation parents of complex and single ventricle congenital heart disease and defect survivors. They are the soldiers who taught us how to fight. Thank you.
Heart Caths & Warrior Blood
Heart catheterizations are a minor invasive procedure to check out hearts to see from the inside. It is comforting to be able to see a heart cath lab before you have a catherization to ease your mind. Stephanie Romer writes about her experiences.
What to Tell A CHD Child...
Keeping the innocence. How much and what should I tell my baby or child with congenital heart disease or defect. Parents, advocates, and doctors can discuss this together as well. Stephanie Romer shares her thoughts on this.
CHD Brain & ADHD
CHD Brain damage comes out in many forms - Executive Functioning issues that can look like and be diagnosed as ADHD, Learning Disabilities, Behavioral Issues, and more...Stephanie Romer writes about her experiences.
34 yr old HLHS Survivor
HLHS warrior turns 34 years old. Hypoplastic Left Heart Syndrome. Congenital heart disease survivor. Stephanie Romer's 34th Birthday - 2019.
Life with 5 CHD's
Stephanie Romer Living and loving life with five congenital heart defects. Hypoplastic Left Heart Syndrome, Transposition of the great arteries, atrial septal defect, ventricular septal defect, mitral valve stenosis
Learning Disabilities & CHD
CHD and Learning disability...Stephanie Romer writes about her experiences and thoughts.
Illness or Drug Addict
Treated like a drug addict in the Emergency Room for being young with a chronic, invisible illness. Stephanie Romer writes about her experiences.
Stress Tests
With CHD we have to go through constant testing. Stress tests is one of those. Living with Congenital Heart Disease and HLHS - Hypoplastic Left Heart Syndrome - makes it more difficult. Stephanie Romer writes about her experiences.
Oldest HLHS Survivor Making Waves
Stephanie Romer story by Project Heart living with half of a heart, twice the fight. Living with HLHS, TGA, ASD, VSD, MVS. Advice for parents and congenital heart disease and defect survivors, patients, doctors, cardiologist.
Show More

Do you have a coach to help guide you through your individual or family struggles?

Chronic Illness Coaching: 

Illness | Wellness | Trauma

  • Facebook
  • Twitter
  • YouTube
  • Instagram

Please see Terms & Conditions for all privacy policies and disclosures.