Stephanie Romer is a 31-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor. She was born in Dayton, Ohio in 1985 and had 3 heart surgeries at Cincinnati, Children's by Doctor Warren Bailey between 1986-1988. Stephanie was one of the original Fontan patients in 1988. She is a retired personal assistant, business manager, and nanny and caregiver of 12 years for special needs children and adults. She is currently a CHD Advocate, Researcher, Motivational Speaker and Writer who is working on her first book. She is also the Director of an Adult CHD Patient Group in Tampa, FL.
Crisis Cicatrix is a 24-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor. Born in 1993, he had his Norwood in ‘93, Hemi-Fontan in ‘94, and Fontan in ’97, at the Children’s Hospital of Philadelphia (CHOP). He is currently a music and film producer based in Southeast Florida.